I’m Probably Going to Hell for This …

Image…but I had to laugh this morning.  There is a teen in our community who has a horrible illness that could have been life-threatening yet it was caught early and the doctors are confident that this teen has a 100% survival rate on kicking this disease’s ass.  The treatment sucks and the child is on various meds, missing a lot of school, etc. but in about four to six months, will be completely fine.

I know the mom must be going through hell and all the running to doctors and the hospital for treatment has to be a royal pain (been there!) but … you’re child is going to be fine!  The mom is part of the same group of people that I deal with on a regular basis who I have to treat almost like children to get them to understand that when it comes to Bella you need to remember certain things; 1)  You can’t pull on her limbs 2) Her arms aren’t long enough or strong enough to absorb the impact of a fall – it will be her skull that will take the brunt of it.  3) The closest hospital with the staff that knows how to operate on the head of a child with dwarfism is over five hours away.  I could go on and on but you get the idea.  If you are a parent of a child with dwarfism, you know the drill.

Yet, I can’t help but want to wave the “HELLLLLLLLO!” flag at this mom over her recent comments about being concerned about her suffering from PTSD once all of the trauma of this medical event with her child is over.  She said, “Everyday it’s something,” Really?  No shit? Welcome to my world!  (Yes, I said, “shit” it won’t happen again).

Not that I am screaming for attention here but other parents with kids with special needs don’t have the luxury of knowing that they just have to hold it together for a few more months and life will go back to some semblance of normalcy.   There will be emotional scars, sure, but for the most part, it will be all over.  Moms like me will never even grasp what that light at the end of the tunnel is even like, it just simply isn’t an option for us.

I know I am being irreverent here but I am just dumbfounded at how myopic people can be.  I really have to wonder if it has anything to do with the fact that we have always kept Bella’s situation within our family and close circle of friends.  If she has something going on medically, or potentially going on, we don’t go posting it all over Facebook to make people feel sorry for us or to tisk, “Oh! That poor family!”  It is our cross to bear and I am doing what needs to be done for Bella and no one else needs to know about it because it is just water cooler fodder for them.   If you need to be in-the-know, I will let you know!

I know that this mom is most likely just having a weak moment where she felt sorry for herself and made those feelings public.  I know that she is right in the middle of the storm with the medical side of her situation with her child and can only see how things affect her and not vice versa – please – don’t think that I am heartless.  I can totally understand where she is coming from but to be worrying about having PTSD when this is all over?  Come on!

I just wish people could take the time to realize that all of those kids with special needs that they pass in the store, at the mall or even at the hospital, have parents that live with whatever the condition may be, everyday …. forever.

(Thank you for letting me vent today!)

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